It was hurry up and wait today at the normally-efficient M. D. Anderson. We waited for a couple of hours during our appointment with Dr. Kavanagh and again at the chemo session. The latter was scheduled for 2 PM but we didn't get in until 4 PM.
Here are some "bullet points" from today's activities:
* Dr. Kavanagh explained that the CT scan was consistent with Susan's symptoms that she "feels full" after consuming only a small amount of food. He endorsed the idea of a puree-based diet.
* He also said it was too early to know if the TLK286 was working, but recommended continuing.
* The dietician, Maria, came up with some really high-powered nutrients for Susan to try. One of these, Nestle's VHC packs 2.25 calories per millileter, so that she would get 560 calories in 8.45 oz of liquid--the highest rating so far. We asked her about Scandishake, but she said that the data she had on it was inconsistent as to the actual calories per ounce. She gave us a sample of the VHC as well as two other products for Susan to try. If she is able to consume only 2 1/2 cans of the VHC, she would be at break even on calories and protein. At her weigh-in today she had lost only a single pound, not two as in past weeks, so already she seems to be doing better in this department
* On the other hand, the more of the TLK she takes, the more nausea she has--suggesting that this side effect is accumulating in her system. Today's chemo went well, but Susan was more nauseous than usual. Tonight, after a 1/2 cup of acorn squash soup, she is resting comfortably.
Tonight at dinner Susan said that I tended to give too many details about her physical condition. "You ought to say more about the spiritual aspects," she said. "What would you like for me to tell them?" I asked. "First, ask them to pray that the chemo kills the bad cells. Then ask them to pray that we would see how all things work together for good in our situation. Then ask them to pray that we will see the Lord's incredible love through it all."
So there you are. She has said it all, as usual. And as regards the third request, as I look deep into the eyes of my beloved wife, who has courageously battled this disease for almost 3 years, I do indeed see the Lord's love shining through! Thanks for praying.
Posted by John Dishman at March 13, 2003 07:57 PM