My delay in updating this page has actually been a positive one: I didn't have time because of a "weekend of feasting," to use Biblical language. David & Elizabeth joined us for the weekend, and their visit really energized Susan. In addition, I can't help but think that the daily hydrations are also helping. For the last two nights we've had all 16 family members together to celebrate various birthdays, father's day, etc. Through it all Susan has managed to maintain her alertness and has been relatively free of severe pain. Once again she was able to attend church today.
Last Thursday we consulted with a gastronenterologist named Dr. Rogoff. He was a very compassionate and thorough physician, and Susan liked him. He would like to start Susan on TPN (total parenteral nutrition) which is basically giving her nutrition through a direct infusion through her mediport. Tomorrow we decide either to go into the hospital to do a quick start on TPN, or stay home and use home health care to give a slower start. I believe Susan will opt for the former because she feels it is safer. After the quick start yours truly will be responsible for keeping the pump going for a 12 hour overnight infusion every day.
Another big day this week will be Wednesday. That's the day we see Dr. Savin and Susan decides whether to go ahead with the proposed Taxotere treatment. This is controversial in the medical literature because some "experts" think that the pain of the chemo at this stage of the disease is not worth the gain--which is expected to be short term. Susan very much wants to do the Lord's will in this decision, and thus we would greatly appreciate your prayers for wisdom in making this decision. She will likely make it in real time after talking to Dr. Savin on Weds.
Posted by John Dishman at June 15, 2003 10:53 PM